• A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities 

      Beukelman, Timothy; Anink, Janneke; Berntson, Lillemor; Duffy, Ciaran; Ellis, Justine A.; Glerup, Mia; Guzman, Jaime; Horneff, Gerd; Kearsley-Fleet, Lianne; Klein, Ariane; Klotsche, Jens; Magnusson, Bo; Minden, Kirsten; Munro, Jane E.; Niewerth, Martina; Nordal, Ellen Berit; Ruperto, Nicolino; Santos, Maria José; Schanberg, Laura E.; Thomson, Wendy; Suijlekom-Smit, Lisette van; Wulffraat, Nico; Hyrich, Kimme (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-04-19)
      Background: To characterize the existing national and multi-national registries and cohort studies in juvenile idiopathic arthritis (JIA) and identify differences as well as areas of potential future collaboration. <br> <br> Methods: We surveyed investigators from North America, Europe, and Australia about existing JIA cohort studies and registries. We excluded cross-sectional studies. We captured ...
    • Validation of prediction models of severe disease course and non-achievement of remission in juvenile idiopathic arthritis part 2: Results of the Nordic model in the Canadian cohort 

      Henrey, Andrew; Rypdal, Veronika Gjertsen; Rypdal, Martin Wibe; Loughin, Thomas; Nordal, Ellen Berit; Guzman, Jaime (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-01-15)
      <b>Background</b> Validated clinical prediction models to identify children with poor prognosis at the time of juvenile idiopathic arthritis (JIA) diagnosis would be very helpful for tailoring treatments, and avoiding under- or over-treatment. Our objective was to externally validate Nordic clinical prediction models in Canadian patients with JIA. <b>Methods</b> We used data from 513 subjects ...
    • Validation of prediction models of severe disease course and non-achievement of remission in juvenile idiopathic arthritis: part 1—results of the Canadian model in the Nordic cohort 

      Rypdal, Veronika Gjertsen; Guzman, Jaime; Henrey, A; Loughin, T; Glerup, Mia; Arnstad, Ellen Dalen; Aalto, Kristiina; Rygg, Marite; Nielsen, Susan M.; Herlin, Troels; Fasth, Anders; Berntson, Lillemor; Rypdal, Martin Wibe; Nordal, Ellen Berit (Journal article; Tidsskriftartikkel; Peer reviewed, 2019-12-05)
      <i>Background</i> - Models to predict disease course and long-term outcome based on clinical characteristics at disease onset may guide early treatment strategies in juvenile idiopathic arthritis (JIA). Before a prediction model can be recommended for use in clinical practice, it needs to be validated in a different cohort than the one used for building the model. The aim of the current study was ...